Resources
ARVC
The following community organizations offer information and resources to individuals and families affected by ARVC:
- Sudden Arrhythmia Death Syndrome Foundation (SADS)
- The Johns Hopkins Precision Medicine Center of Excellence for ARVC
- American Heart Association (AHA)
- Cardiomyopathy UK
- Children’s Cardiomyopathy Foundation (CCF)
- Italian Association for the Study and Research of Cardiomyopathies (AICARM)
- Global Heart Hub (GHH)
- Genetic Cardiomyopathy Awareness Consortium
Gene Therapy
Find more information about gene therapy:
Clinical Trial Participation
Visit the resources below to learn more about taking part in clinical research:
Tenaya Therapeutics
Find more information about Tenaya Therapeutics
Contact Us
For more information about Tenaya’s clinical programs, complete this form or contact our Patient Advocacy team by email or phone at (650) 825-6990 option 4.
Address
Tenaya Therapeutics, Inc.
171 Oyster Point Blvd., Suite 500
South San Francisco, CA 94080
