Resources
ARVC
The following community organizations offer information and resources to individuals and families affected by ARVC:
- Sudden Arrhythmia Death Syndrome Foundation (SADS)
- The Johns Hopkins Precision Medicine Center of Excellence for ARVC
- American Heart Association (AHA)
- Cardiomyopathy UK
- Children’s Cardiomyopathy Foundation (CCF)
- Italian Association for the Study and Research of Cardiomyopathies (AICARM)
- Global Heart Hub (GHH)
- Genetic Cardiomyopathy Awareness Consortium
Gene Therapy
Find more information about gene therapy:
Clinical Trial Participation
Visit the resources below to learn more about taking part in clinical research:
Tenaya Therapeutics
Find more information about Tenaya Therapeutics
- Information for patients and families
- Tenaya’s publications on gene therapy research for genetic heart conditions
- Genetic testing and counseling program: Tenaya offers a no-cost genetic testing and counseling program. For more information please contact Patient.Advocacy@Tenayathera.com or have your clinician contact MedAffairs@Tenayathera.com
Contact Us
Address
Tenaya Therapeutics, Inc.
171 Oyster Point Blvd., Suite 500
South San Francisco, CA 94080
